It has been a very long time since my last family blog post. Daily lives got ahead of us and before you know it, Stella will be turning 3 and we will be welcoming baby Jefferson into the world in a couple of months. So here is the scoop on Mr Jefferson. We found out a couple months ago that he has a CHD (Congenital Heart Defect) called AVSD (Atrioventricular Septal Defect) that will require OHS (Open Heart Surgery) between 4 months to a year of his life. (I'm giving you the abbreviations now so I don't have to spell them all out every time in the future) So this will be a way to get our experience out in cyber space so if anyone wants to read or relate, they can follow our journey, or hopefully help you along yours.
So here is the story of how it all came to be:
During one of my routine appointments to the Perinatologist at Obstetrix at Ogden Regional, where I was suppose to be monitored for my cervix, the sonographer saw something off with his heart. Now with my pregnancy with Stella, I had an "incompetent cervix" and was dialated to a 1 at 26 weeks and was put on bed rest for 3 months. It is suppose to be a problem with every pregnancy, but my cervix with Jefferson is above normal and extra long. Thank Goodness!!
The sonographer briefly pointed it out to us but made Dr Kathrine Gestland aware of the possible problem. Dr Gestland just thought it was just a murmur at first and wanted to check his heart again in 3 weeks to see if it had changed.
Three weeks later we came back for the follow up appointment. His heart had shown no change in the past 3 weeks. There was a definite hole in the heart and other valve issues. Our Perinatologist diagnosed it as AVSD and suggested we saw a Cardiologist at Primary Children's Hospital to have a Fetal Echo to see if they see the same problem.
Dr Gestland was amazing, and so was the sonographer we saw, I think her name is Rose! We are so grateful for her and her amazing eye in catching this defect. Although there is not much you can prepare for, it is so nice to know what we will be going through next year so that we can plan on time off, and healing and care for our baby Jefferson. We are so blessed to live in a time when we have the technology and amazing Doctors to be able to figure this out early and to help guide us through the process. And we are so privileged to be able to live near amazing Hospitals like Ogden Regional and Primary Children's. I know that our baby Jefferson will be in some of the best hands in the world.
So here begins our journey with our beautiful little "Heart Baby."
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