2 months!!

My cute little dude turnes 2 months old today!!  He is growing up too fast!! 

Just in the past week or so he has started smiling, and just today, he smiles back when you smile or rub his cheeks. 

Just a few things that I love about this cute dude:

• His adorable hair.  You try to comb it down and it sticks right back up. 

• He is just like his sister and kicks his socks off every chance he gets. 

• His eyes are BLUE!!  I love my blue eyes kids!! 

• He gets the hiccups just about every time after he eats.  

• He is so ticklish we in just about every part of his body.

• He doesn't like to be tickled.

• He loves to hold onto my hair

• Oh his smile!  I just cannot get enough of that toungy grin!! 

• He still sleeps 9+ hours every single night!! 

• He grunts when he is waking up and when he is hungry. He never cries unless he is starving! 

 

He gets his next round of synergis shot next week, so then we will find out how much he has grown in a month. 

We cannot get enough of this handsome dude!! 

My 7 week old

Jefferson is doing amazig everyone.  He has been off of oxygen for several weeks now!!  YAY!!! I know it's only one more bag to carry around to dr appts, but that is one less bag, one less cord, and one less thing causing him pain when we have to pull the tape off his face every day.

Just seeing this breaks my heart!  He is so tough, he doesn't ever cry, but this cannot feel good! 

So yes, no more oxygen, having to pull the cannula away when he sats high, and no more stinking tape!!  It's a huge giant step for him!  I'm so proud of him! 

Another thing that is so amazing about him, he sleeps a good 10-11 hours straight every night.  What 7 week old baby sleeps through the night?  My stud does!  He is amazing and just as perfect as ever!  

I love this onsie, reminds me of his daddy's awesome Jeep, that I cannot wait for him to ride in.  I cannot wait to see his excitement out of getting to ride in Dads truck, like Stella does, some day.  It's adorable! 

He's just adorable! 

Grieving continued..

I found this article off Facebook and I thought it was just wonderful!  This is almost identical to how I felt.

http://liveactionnews.org/doctor-tells-expectant-parents-of-baby-with-down-syndrome-that-they-are-a-lucky-couple/

Grieving .. Huh?

I have talked and met many new wonderful friends now that we have joined a new family, the Down syndrome family.  I have read and heard that many parents were depressed and cried for days after they found out their child had DS.  I am right in the middle of a book, "Babies with Down Syndrome," and I am only in chapter 2 and I feel horrible.  I feel horrible for all of those people whom have cried and been so depressed over their baby.  I don't quite understand how could one be sad about a beautiful baby that you carried for 9 months, prepared a nursery, possibly had baby showers, filled the drawers full of clothes and blankets; then go through the difficult task of giving birth to that sweet baby.  Don't get me wrong, I grieved, for a totally of probably an hour.  It is a pure blessing to be given a child.  How could you be sad about that. I understand that they might not be your ideal child, have full potential, go to college, get married, have kids, etc.    But they are still your sweet innocent angel.

Probably the one thing that felt like a huge jab to my chest, was when I found out that male DS kids are infertile.  That was hard to read.  I had to take a minute to breathe after that.  But then I got to thinking, all these trials, his disabilities, his health issues that he will have to go through throughout his life, they are only temporary.  He will be perfect in the next life.  It is only temporary. 

He was sent to us for a reason.  For that I do not know, but am eternally grateful for the opportunity.  I still cannot understand why their has to be a lable.  I know he is extra special and has an extra chromosome, but he is just a baby.  A super cute baby that eat, sleeps, poops, is starting to coo and smile at you.  I cannot get enough of his cuteness.  He is just a baby and seems absolutely normal to me.  Just like any other child, he is no different.  I just am so madly in love with this stud muffin and I will take him any way I can get him!!  How could anyone grieve, or feel the need to grieve, when you get to look at this face all day? 

My 3 year old Princess!

In the midst of all the Jefferson craziness, Stella Rae turned 3!  She had been wanting a Snow White birthday party and begged for it every chance she got.

   I wanted her to feel special and put the spotlight on her, instead of Jefferson.  She did not get hardly, if any, attention from her parents while Jefferson was in the NICU, so we wanted to go out a little for her party.  So we hired Snow White to come over and entertain the girls.  There is a company locally called Enchanted Princess Parties where these women dress up as Disney Princesses and play the part of the princess they are dressed as.  They have big poofy wire dresses, wigs that are the exact hair do, voice is the same and their hands and arms are just like how the princesses hold and wave them in the movies.  We invited a couple friends and cousins and they all came dressed in their princess dresses!  There were 7 girls there and watching their faces light up when Snow White AND Cinderella walked into the door was priceless!  They entertained the girls with mini make overs, glitter tattoos, magic tricks, played games, and painted nails.  It was worth every penny to have them entertain the girls! 

    I also did a Mining dig in sawdust where the girls dug in the sawdust to find all kinds if jems, necklaces, bracelets, rings and candy.  The girls loved it and got to take some fun jewelry home.  

Here are a few pictures of the fun party. 

(Part of Cinderellas beautiful dress)

My adorable little Birthday Princess!

The princess cake I made turned out pretty cute, and I made cute red bow headbands for each of the girls. 

I am so happy she loved it and had a blast with her friends.  Worth every penny to see her huge smile! 

Happy 3rd Birthday Princess Stella Rae!

Happy 1 Month Little Love

(Cute pecan shaped like a heart) 

Well my little love is 1 month old!  He had his first Cardiologist visit yesterday.  Everything looks great!  His lungs are improving and the Dr Pinto suspects he will no longer need oxygen with in the next month, YAY!! He has been sating high lately and we usually have to pull his nasal cannula away from his face 98% of the time, or shut off the oxygen all together to get him to come down to normal. He weighed in at 8lbs 11oz and was 21" long.  This is amazing for a heart baby!  Typically kids with heart defects usually slows down their growth, but he just keeps on chugging! 

   He is doing so great and is such an amazing baby.  I wanted to go over a few of my favorite things that I love about my handsome dude! 

I love his hair!!  

Especially after a bath! 

I love his cute little folded over ears 

I love his nubby little fingers! 

I Love that he sleeps a good 5+ hours straight each night! 

I love his little head bob he does when he breathes.  Although it kills me to see him work so hard just to breathe, it's pretty cute. 

I love his waddle, and I just love to kiss it!

I love his little rolls 

I love his adorable almond shaped eyes.  

He is such an angel and I just keep falling in love with him every second I get to snuggle him!  My kids are pretty amazing!! 

Photo Shoot!

My wonderful sister came over and took to capture my sweet boys on film (well digitally that is).

Here he is!!